No More Bread and Dr. Wahls

I had an interesting week of eating a vegan diet.  Although I was very faithful, it really didn’t go very well.  I know, I know, it takes time for your body to adjust. But by the last two days, my muscles in my legs, and arms really hurt.  My lower back also became stiff and sore.  I…

Bread Anyone?

Since I’m still waiting on insurance approval (or denial) of the interferon, I decided to do what I always do when faced with a medication that I really don’t want to take…I start scouring the internet for other options. A few weeks ago I subscribed to a uveitis facebook page, and yesterday there was a…

Afraid

Some days I am just plain afraid.  I’m not afraid of the disease.  I’m afraid of the treatments. Not all of the treatments, just some of the treatments.  Right now, just the one I am supposed to call the pharmacy about. My homework on the interferon is done and I am awaiting its preapproval by the…

How Much Was That?

After my trip to the OHSU gurus last week, the first assignment I was given was to go to the pharmacy and find out how much two different types of interferon cost.  I knew they would be expensive, I know that my insurance company needs to give preapproval for me to even get it, and…

Hope

A couple of months ago, I showed up on time for an appointment with my retina doc.  To say I was terrified is an understatement. I woke up that morning thinking, “Today could be the day.  It could be the day that I lose all vision in one of my eyes.” In fact, I was…

When Things Got Dark

“Every treatment we take on has risks.  All of them.  But, I keep choosing which risks to take, because I know what the darkness is like, and if it comes to that for me I will deal with it, but if I can keep putting it off, believe me, I will try.”   A few…

A Rheumatologist…really?

In the beginning, one of the things that I didn’t understand was why I was being sent to a rheumatologist.  After all, it was my eyes that were the problem not my joints. Since then, I have learned that uveitis is an inflammatory disease, and in my case, an autoimmune inflammatory disease, not unlike rheumatoid…

Pick Your Poison

In a couple of weeks I will be headed back over the mountain to see the experts at Casey Eye Institute.  The issue is my retinas.  They’ve been swollen for about two years, and we can’t seem to find a medication that will work, or have any impact for that matter, for more than a…

A Needle in the Eye

A couple of years into the land of autoimmune eye disease, a new doc came to town…well, Bend anyway, which is about 50 miles from where I live.  He was a retinologist, or a retina doc. By this time, I had already freaked a few doctors out.  They didn’t know what to call what was going…

There’s No Shame in a Magnifying Glass

One of the things most of my family enjoys doing is playing games.  We like all kinds, but especially strategy type games, and games that require some thinking.  A new favorite is a game called Seven Wonders. My daughter returned home last night after a dinner date with her boyfriend, and instead of watching a…